The Sunday Rumpus Interview: Emily Rapp
A day of celebration for many, Mother’s Day is a more complex holiday for people who have lost their mothers–or their children.
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Posts Tagged: Tay-Sachs
The Sunday Rumpus Essay: Getting Made (in honor of Ronan Louis and Emily Rapp)
The Rumpus joins yoga teacher Jennifer Pastiloff in remembering Emily Rapp’s son, Ronan Louis, whose brief, remarkable life ended in the early morning hours on February 15.
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It was with great sadness that we heard the news this morning of the passing of Emily Rapp’s son Ronan. Ronan suffered from Tay-Sachs, a genetic disease caused by the absence of a vital enzyme called Hex-A, which causes cells to become damaged, resulting in progressive neurological disorders.
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