Difficult Decisions

By

She was fed exclusively through a gastrostomy tube. Although she couldn’t speak, she often smiled and made noises and expressed pleasure in the company of her siblings. Her parents — worried that their daughter’s continued growth would restrict her ability to join family trips, swing in the backyard, take baths or cuddle in their arms — formed a plan with Gunther to limit her adult stature.

The New York Times has an investigation of growth hormones and the difficult decisions that face parents of children with disabilities.


Lyz's writing has been published in the New York Times Motherlode, Jezebel, Aeon, Pacific Standard, and others. Her book on midwestern churches is forthcoming from Indiana University Press. She has her MFA from Lesley and skulks about on Twitter @lyzl. Lyz is a member of The Rumpus Advisory Board and a full-time staff writer for the Columbia Journalism Review. More from this author →